t h e m a y f i l e s is foremost a family blog, chronicling everyday life. Life including natural, healthy eating (with recipes thrown in at random), home educating (with ideas popping up sporadically), an attempt to homestead on .2 acres (with very meager yields), raising 3 of 4 children with a rare genetic disorder, and lots of highly personal family triumphs and failures. You may also find an eclectic array of musings on politics, exercise, sewing, emergency preparedness, backyard chickens, and religion. This blog isn't a campaign to glorify anyone or anything. Just simply a record.


? More Questions ?

You are looking at a 9 lb 10 oz bundle of trouble.

Today at her doctors appointment she was clearly unready to be weaned from her oxygen. The doctor wrote a devastatingly, dramatic letter concerning the woeful condition of Berkeley's health the last 3 months and as a result 2 hours later our insurance delivered a pulse oximeter for our home. One to three months was the doctors prescription. Longer if needed. Will I really have a child crawling with oxygen?

When I tested Berkeleys saturation levels she was between 88% and 94%. It was pretty much deja vu from 3 weeks ago. My heart sunk decidedly in my chest as I fought off a break down. I thought certainly we would see some improvement.

I will probably check her for a couple hours a day until we see the pulmonologist in a week. This way I will have a solid idea of her daily sats. After that, it seems like once a week will be enough. Clearly we aren't seeing a rapid recovery.

I was put in charge of her weaning process. We don't see the pediatrician for 2 months.

I have so many question and so few answers.

1 comment:

Brittney said...

My heart hurts for you. It must be so hard to not know. Hopefully things improve soon.