t h e m a y f i l e s is foremost a family blog, chronicling everyday life. Life including natural, healthy eating (with recipes thrown in at random), home educating (with ideas popping up sporadically), an attempt to homestead on .2 acres (with very meager yields), raising 3 of 4 children with a rare genetic disorder, and lots of highly personal family triumphs and failures. You may also find an eclectic array of musings on politics, exercise, sewing, emergency preparedness, backyard chickens, and religion. This blog isn't a campaign to glorify anyone or anything. Just simply a record.

6.24.2010

Not Alone

The neonatologist just called.

He said our family shouldn't have to do this alone. We shouldn't be having to try and diagnose and treat our children without support. We need to find out do they have PCD, and if not, what is it and how do we move forward. He said this isn't their specialty but they will make some calls to help connect us.

No doctor has ever said that to me. I sincerely hope they will follow through. It would be huge burden lifted.

As anticipated, they called, Berkeley failed the in depth hearing assessment. Her ears are full of fluid.

They are concerned she may get pneumonia again. Her oxygen and air flow needs are not improving.

Little Berkeley hang in there sweet pea, we will get you home.
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