t h e m a y f i l e s is foremost a family blog, chronicling everyday life. Life including natural, healthy eating (with recipes thrown in at random), home educating (with ideas popping up sporadically), an attempt to homestead on .2 acres (with very meager yields), raising 3 of 4 children with a rare genetic disorder, and lots of highly personal family triumphs and failures. You may also find an eclectic array of musings on politics, exercise, sewing, emergency preparedness, backyard chickens, and religion. This blog isn't a campaign to glorify anyone or anything. Just simply a record.



Berkeley's oxygen and flow needs have increased again. But she isn't on CPAP or high flow.

Still too exhausted to eat.

One more day of antibiotics.

Still has a cough, but doesn't seem to be rattling.

Ellery told me "Mom your parts are huge!"

Brim jumped on my incision.

I went into a store and a gas station for the first time in almost 2 months.

I played barbies with el and pip, we made elaborate kleenex clothing.

I read mother goose to emmy, his favorite book, I think he is having withdrawals from the 10 times a day we did on bedrest.

Emmett has taken to calling me grandma. I am trying not to get emotional about it.

Callista learned to float on her back in swimming lessons, which I got to walk over and see.

I am almost weaned off of motrin now, I am healing so quickly and well.

Emmett can ride the zipline its entire length.

I walked into the NICU today, and at the security rotunda a nurse was on the phone: "Get the parents back quickly to the bedside, their baby is crashing." Immediately I was overcome with emotion. I walked in and it seemed every nurse and doctor were surrounding this little gift from God. The mother was wheeled in, in her gown, pushed by her husband. I can't describe the look. I had to look away. I heard them draw the curtains. A few minutes later my nurse came in. She tried to brush the tears away before I could see them. When I left the baby wasn't there anymore. I don't know what happened. But I am counting my blessings, offering selfish prayers of thanks that the phone call wasn't for me, and you can bet I held Berkeley a little tighter and gave her peaceful little head a whole lot of kisses.

Every time my phone rings my heart skips a few beats.


wonderchris said...

Prayers for that family and prayers for yours! The NICU is a tough place to be. I know I don't know you and you don't know me - but I think about your family and pray for sweet baby Berkeley Rose.

EmJay said...

thank you for keeping us all updating with your blog. She is such a beautiful baby girl and I know she will keep fighting like a champ.

EmJay said...

That was such poor English. I meant to capitalize "thank," and say "updated," not "updating." I think I need to attend the Rebecca Academy.